Kicking off ECTRIMS Week | Hosted by Alexion | Barcelona, Spain

Marion shares her powerful journey living with neuromyelitis optica (NMO), offering an honest look at the challenges of a rare disease diagnosis—and the resilience it takes to move forward. Nearly five years post-diagnosis, she reflects on the highs and lows, the community that lifted her, and the purpose she’s found through advocacy, healing, and hope.

This special event in Barcelona kicks off ECTRIMS Week and highlights the lived experiences that continue to shape the future of rare disease awareness and patient-centered care.